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Dis Colon Rectum. 1984 Jun;27(6):351-5. doi: 10.1007/BF02552996.

The Danish Polyposis Register. Description of the methods of detection and evaluation of completeness.

Diseases of the colon and rectum

S Bülow

PMID: 6734358 DOI: 10.1007/BF02552996

Abstract

A manual Danish register of patients with familial polyposis coli and their family members was established in 1971. The methods of collection of propositi, preparation of pedigrees, collection of call-up cases, and the organization of the register are described. A country-wide prophylactic proctosigmoidoscopic examination of first-degree relatives, aged 10 to 59 years, resulted in the detection of 42 call-up cases and by December 1982, 319 cases of polyposis were registered in 94 families. An evaluation of the number of collected propositi and call-up cases shows almost complete registration.

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