Display options
Cite
Vanstone M, Rewegan A, Brundisini F, et al. Patient Perspectives on Quality of Life With Uncontrolled Type 1 Diabetes Mellitus: A Systematic Review and Qualitative Meta-synthesis. Ont Health Technol Assess Ser. 2015;15(17):1-29
Vanstone, M., Rewegan, A., Brundisini, F., Dejean, D., & Giacomini, M. (2015). Patient Perspectives on Quality of Life With Uncontrolled Type 1 Diabetes Mellitus: A Systematic Review and Qualitative Meta-synthesis. Ontario health technology assessment series, 15(17), 1-29.
Vanstone, Meredith, et al. "Patient Perspectives on Quality of Life With Uncontrolled Type 1 Diabetes Mellitus: A Systematic Review and Qualitative Meta-synthesis." Ontario health technology assessment series vol. 15,17 (2015): 1-29.
Vanstone M, Rewegan A, Brundisini F, Dejean D, Giacomini M. Patient Perspectives on Quality of Life With Uncontrolled Type 1 Diabetes Mellitus: A Systematic Review and Qualitative Meta-synthesis. Ont Health Technol Assess Ser. 2015 Sep 01;15(17):1-29. eCollection 2015. PMID: 26649106; PMCID: PMC4664939.
Copy Download .nbib Format: NLM
Share it on

Ont Health Technol Assess Ser. 2015 Sep 01;15(17):1-29. eCollection 2015.

Patient Perspectives on Quality of Life With Uncontrolled Type 1 Diabetes Mellitus: A Systematic Review and Qualitative Meta-synthesis.

Ontario health technology assessment series

Meredith Vanstone, Alex Rewegan, Francesca Brundisini, Deirdre Dejean, Mita Giacomini

Affiliations

  1. Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario ; Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario.
  2. Department of Family Medicine, McMaster University, Hamilton, Ontario.
  3. Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario ; Health Policy PhD Program, McMaster University, Hamilton, Ontario.

PMID: 26649106 PMCID: PMC4664939

Abstract

BACKGROUND: Patients with uncontrolled type 1 diabetes mellitus may be candidates for pancreatic islet cell transplantation. This report synthesizes qualitative research on how patients with uncontrolled type 1 diabetes perceive their quality of life.

OBJECTIVE: The objective of this analysis was to examine the perceptions of patients with uncontrolled type 1 diabetes on how it affects their lived experience and quality of life.

DATA SOURCES: This report synthesizes 31 primary qualitative studies to examine quality of life from the perspectives of adult patients with type 1 diabetes mellitus and their families or partners.

REVIEW METHODS: We performed a qualitative meta-synthesis to integrate findings across primary research studies.

RESULTS: Long- and short-term negative consequences of uncontrolled type 1 diabetes affect all aspects of patients' lives: physical, emotional, practical, and social. The effect on each domain is far-reaching, and effects interact across domains. Uncontrolled blood sugar levels lead to substantial psychological distress, negative moods, cognitive difficulties, irritable or aggressive behaviour, and closely associated problems with relationships, self-image, and confidence. Emotional distress is pervasive and under-addressed by health care providers. Patients live in fear of complications from diabetes over the long term. In the shorter term, they are anxious about the personal, social, and professional consequences of hypoglycemic episodes (e.g., injury, humiliation), and may curtail normal activities such as driving or socializing because they are worried about having an episode. The quality of life for patients' family members is also negatively impacted by uncontrolled type 1 diabetes.

CONCLUSIONS: Uncontrolled type 1 diabetes has significant negative impacts on the quality of life of both people with the disease and their families.

References

  1. J Nurs Scholarsh. 2002;34(3):213-9 - PubMed
  2. Res Nurs Health. 2003 Apr;26(2):153-70 - PubMed
  3. Nurs Res. 2003 Jul-Aug;52(4):226-33 - PubMed
  4. Qual Health Res. 2003 Sep;13(7):893-904 - PubMed
  5. BMC Med Res Methodol. 2004 Mar 16;4:5 - PubMed
  6. Stud Health Technol Inform. 2004;107(Pt 1):311-6 - PubMed
  7. J Health Psychol. 2005 May;10(3):409-23 - PubMed
  8. J Adv Nurs. 2006 Sep;55(6):708-14 - PubMed
  9. Diabetes Educ. 2006 Nov-Dec;32(6):918-24 - PubMed
  10. Qual Health Res. 2007 Mar;17(3):300-10 - PubMed
  11. Diabetes Care. 2007 Mar;30(3):549-54 - PubMed
  12. Qual Health Res. 2007 May;17(5):705-10 - PubMed
  13. J Health Psychol. 2009 Mar;14(2):242-50 - PubMed
  14. PLoS Med. 2009 Jul 21;6(7):e1000097 - PubMed
  15. BMC Med Res Methodol. 2009 Aug 11;9:59 - PubMed
  16. Psychol Health. 2010 Apr;25(4):491-506 - PubMed
  17. Paediatr Nurs. 2010 Dec;22(10):25-8 - PubMed
  18. Qual Health Res. 2011 Sep;21(9):1220-8 - PubMed
  19. Patient Prefer Adherence. 2011 Jan 20;5:65-72 - PubMed
  20. BMC Womens Health. 2011 Apr 07;11:10 - PubMed
  21. Diabet Med. 2012 Mar;29(3):321-7 - PubMed
  22. Diabet Med. 2012 Feb;29(2):257-9 - PubMed
  23. Diabet Med. 2012 Jan;29(1):148-52 - PubMed
  24. J Occup Environ Med. 2012 Jan;54(1):92-100 - PubMed
  25. BMC Public Health. 2012 Mar 08;12:167 - PubMed
  26. Diabet Med. 2012 Aug;29(8):1079-84 - PubMed
  27. Qual Life Res. 2013 Jun;22(5):997-1004 - PubMed
  28. Diabet Med. 2013 Feb;30(2):209-15 - PubMed
  29. Diabet Med. 2013 Jun;30(6):717-23 - PubMed
  30. Diabet Med. 2013 Jun;30(6):724-30 - PubMed
  31. Diabetes Care. 2013 Sep;36(9):2483-8 - PubMed
  32. BMC Public Health. 2013 Apr 25;13:386 - PubMed
  33. Diabet Med. 2014 Jan;31(1):47-54 - PubMed
  34. BMC Endocr Disord. 2013 Jul 25;13:25 - PubMed
  35. Diabetes Care. 2014;37(1):109-15 - PubMed
  36. BMJ Open. 2014 Jul 23;4(7):e005625 - PubMed
  37. Nurse Res. 2006 Jul 1;13(4):84 - PubMed

MeSH terms

Publication Types