Hope and quality of life, two central issues for cancer patients: a theoretical analysis. Rustøen T. Cancer Nurs. 1995 Oct;18(5):355-61. PMID: 7585489
[The impact of cancer on the healing status of patients]. Cortesi E. Tumori. 1998 Jan-Feb;84(1):S20-3. PMID: 9617380
Cognitive aspects of survey methodology and quality of life assessment. McColl E, Meadows K, Barofsky I. Qual Life Res. 2003 May;12(3):217-8. doi: 10.1023/a:1023233432721. PMID: 12769133
Cognitive psychology and self-reports: models and methods. Jobe JB. Qual Life Res. 2003 May;12(3):219-27. doi: 10.1023/a:1023279029852. PMID: 12769134
The effects of response bias on self-reported quality of life among childhood cancer survivors. O'Leary TE, Diller L, Recklitis CJ. Qual Life Res. 2007 Sep;16(7):1211-20. doi: 10.1007/s11136-007-9231-3. Epub 2007 Jul 11. PMID: 17624814
Validation of the McGill Quality of Life Questionnaire in home hospice settings in Israel. Bentur N, Resnizky S. Palliat Med. 2005 Oct;19(7):538-44. doi: 10.1191/0269216305pm1052oa. PMID: 16295286
Understanding the meaning of social well-being at the end of life. Prince-Paul M. Oncol Nurs Forum. 2008 May;35(3):365-71. doi: 10.1188/08.ONF.365-371. PMID: 18467287
Quality-of-life assessment in cancer clinical trials: an intervention by itself?. Bernhard J, Gusset H, Hürny C. Support Care Cancer. 1995 Jan;3(1):66-71. doi: 10.1007/BF00343923. PMID: 7697305
The effects of response bias on self-reported quality of life among childhood cancer survivors. O'Leary TE, Diller L, Recklitis CJ. Qual Life Res. 2007 Sep;16(7):1211-20. doi: 10.1007/s11136-007-9231-3. Epub 2007 Jul 11. PMID: 17624814
Measuring quality of life in pediatric palliative care: challenges and potential solutions. Huang IC, Shenkman EA, Madden VL, Vadaparampil S, Quinn G, Knapp CA. Palliat Med. 2010 Mar;24(2):175-82. doi: 10.1177/0269216309352418. Epub 2009 Dec 10. PMID: 20007819
Quality of life valuations of HPV-associated cancer health states by the general population. Conway EL, Farmer KC, Lynch WJ, Rees GL, Wain G, Adams J. Sex Transm Infect. 2012 Nov;88(7):517-21. doi: 10.1136/sextrans-2011-050161. Epub 2012 May 29. PMID: 22645393
Mental health-care utilization in survivors of childhood cancer and siblings: the Swiss childhood cancer survivor study. Gianinazzi ME, Rueegg CS, von der Weid NX, Niggli FK, Kuehni CE, Michel G. Support Care Cancer. 2014 Feb;22(2):339-49. doi: 10.1007/s00520-013-1976-3. Epub 2013 Oct 01. PMID: 24081625
Method variation in the impact of missing data on response shift detection. Schwartz CE, Sajobi TT, Verdam MG, Sebille V, Lix LM, Guilleux A, Sprangers MA. Qual Life Res. 2015 Mar;24(3):521-8. doi: 10.1007/s11136-014-0746-0. Epub 2014 Jul 10. PMID: 25008260
A Pragmatic Evaluation of the National Cancer Institute Physician Data Query (PDQ)®-Based Brief Counseling on Cancer-Related Fatigue among Patients Undergoing Radiation Therapy. Bauml J, Xie SX, Penn C, Desai K, Dong KW, Bruner DW, Vapiwala N, Mao JJ. J Palliat Care Med. 2012;2(6). doi: 10.4172/2165-7386.1000125. Epub 2012 Aug 08. PMID: 29479490
Scoping review of response shift methods: current reporting practices and recommendations. Sajobi TT, Brahmbatt R, Lix LM, Zumbo BD, Sawatzky R. Qual Life Res. 2018 May;27(5):1133-1146. doi: 10.1007/s11136-017-1751-x. Epub 2017 Dec 05. PMID: 29210014
Quality of survival and cognitive performance in children treated for medulloblastoma in the PNET 4 randomized controlled trial. Câmara-Costa H, Bull KS, Kennedy C, Wiener A, Calaminus G, Resch A, Kieffer V, Lalande C, Poggi G, von Hoff K, Grill J, Doz F, Rutkowski S, Massimino M, Kortmann RD, Lannering B, Dellatolas G, Chevignard M. Neurooncol Pract. 2017 Sep;4(3):161-170. doi: 10.1093/nop/npw028. Epub 2017 Feb 10. PMID: 31385949
Response shift in results of patient-reported outcome measures: a commentary to The Response Shift-in Sync Working Group initiative. Sprangers MAG, Sajobi T, Vanier A, Mayo NE, Sawatzky R, Lix LM, Oort FJ, Sébille V. Qual Life Res. 2021 Dec;30(12):3299-3308. doi: 10.1007/s11136-020-02747-4. Epub 2021 Jan 22. PMID: 33481193
The mediating effect of pain catastrophizing and perceived injustice in the relationship of pain on health-related quality of life in breast cancer survivors. Leysen L, Cools W, Nijs J, Adriaenssens N, Pas R, van Wilgen CP, Bults R, Roose E, Lahousse A, Beckwée D. Support Care Cancer. 2021 Oct;29(10):5653-5661. doi: 10.1007/s00520-021-06011-4. Epub 2021 Feb 10. PMID: 33569674
Response shift in patients with multiple sclerosis: an application of three statistical techniques. Schwartz CE, Sprangers MA, Oort FJ, Ahmed S, Bode R, Li Y, Vollmer T. Qual Life Res. 2011 Dec;20(10):1561-72. doi: 10.1007/s11136-011-0056-8. Epub 2011 Nov 13. PMID: 22081216