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Adolescent Research Participants' Descriptions of Medical Research.

AJOB empirical bioethics

Grady C, Nogues I, Wiener L, Wilfond BS, Wendler D.
PMID: 27004235
AJOB Empir Bioeth. 2016 Jan 01;7(1):1-7. doi: 10.1080/23294515.2015.1017059. Epub 2015 Feb 19.

BACKGROUND: Evidence shows both a tendency for research participants to conflate research and clinical care and limited public understanding of research. Conflation of research and care by participants is often referred to as the therapeutic misconception. Despite a lack...

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Grady C, Nogues I, Wiener L, et al. Adolescent Research Participants' Descriptions of Medical Research. AJOB Empir Bioeth. 2015;7(1):1-7doi: 10.1080/23294515.2015.1017059.
Grady, C., Nogues, I., Wiener, L., Wilfond, B. S., & Wendler, D. (2016). Adolescent Research Participants' Descriptions of Medical Research. AJOB empirical bioethics, 7(1), 1-7. https://doi.org/10.1080/23294515.2015.1017059
Grady, Christine, et al. "Adolescent Research Participants' Descriptions of Medical Research." AJOB empirical bioethics vol. 7,1 (2016): 1-7. doi: https://doi.org/10.1080/23294515.2015.1017059
Grady C, Nogues I, Wiener L, Wilfond BS, Wendler D. Adolescent Research Participants' Descriptions of Medical Research. AJOB Empir Bioeth. 2016 Jan 01;7(1):1-7. doi: 10.1080/23294515.2015.1017059. Epub 2015 Feb 19. PMID: 27004235; PMCID: PMC4797334.
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Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in .

Molecular genetics and metabolism reports

Vogel KR, Ainslie GR, Phillips B, Arning E, Bottiglieri T, Shen DD, Gibson KM.
PMID: 26120559
Mol Genet Metab Rep. 2015 Jun 01;3:80-87. doi: 10.1016/j.ymgmr.2015.03.009.

OBJECTIVE: Initial studies on the use of non-physiological amino acids (NPAAs) to block the accretion of Phe in the brain METHODS: Control and RESULTS: MAIB was partially converted to AIB CONCLUSIONS: Our data support further pharmacokinetic characterization of MAIB...

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Vogel KR, Ainslie GR, Phillips B, et al. Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in . Mol Genet Metab Rep. 2015;3:80-87doi: 10.1016/j.ymgmr.2015.03.009.
Vogel, K. R., Ainslie, G. R., Phillips, B., Arning, E., Bottiglieri, T., Shen, D. D., & Gibson, K. M. (2015). Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in . Molecular genetics and metabolism reports, 380-87. https://doi.org/10.1016/j.ymgmr.2015.03.009
Vogel, Kara R, et al. "Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in ." Molecular genetics and metabolism reports vol. 3 (2015): 80-87. doi: https://doi.org/10.1016/j.ymgmr.2015.03.009
Vogel KR, Ainslie GR, Phillips B, Arning E, Bottiglieri T, Shen DD, Gibson KM. Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in . Mol Genet Metab Rep. 2015 Jun 01;3:80-87. doi: 10.1016/j.ymgmr.2015.03.009. PMID: 26120559; PMCID: PMC4478616.
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Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations.

EGEMS (Washington, DC)

Cole AM, Stephens KA, Keppel GA, Estiri H, Baldwin LM.
PMID: 27141519
EGEMS (Wash DC). 2016 Mar 29;4(2):1206. doi: 10.13063/2327-9214.1206. eCollection 2016.

CONTEXT: The widespread adoption of electronic health records (EHRs) offers significant opportunities to conduct research with clinical data from patients outside traditional academic research settings. Because EHRs are designed primarily for clinical care and billing, significant challenges are inherent...

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Cole AM, Stephens KA, Keppel GA, et al. Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations. EGEMS (Wash DC). 2016;4(2):1206doi: 10.13063/2327-9214.1206.
Cole, A. M., Stephens, K. A., Keppel, G. A., Estiri, H., & Baldwin, L. M. (2016). Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations. EGEMS (Washington, DC), 4(2), 1206. https://doi.org/10.13063/2327-9214.1206
Cole, Allison M, et al. "Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations." EGEMS (Washington, DC) vol. 4,2 (2016): 1206. doi: https://doi.org/10.13063/2327-9214.1206
Cole AM, Stephens KA, Keppel GA, Estiri H, Baldwin LM. Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations. EGEMS (Wash DC). 2016 Mar 29;4(2):1206. doi: 10.13063/2327-9214.1206. eCollection 2016. PMID: 27141519; PMCID: PMC4827782.
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Developing Governance for Federated Community-based EHR Data Sharing.

AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science

Lin CP, Stephens KA, Baldwin LM, Keppel GA, Whitener RJ, Echo-Hawk A, Korngiebel D.
PMID: 25717404
AMIA Jt Summits Transl Sci Proc. 2014 Apr 07;2014:71-6. eCollection 2014.

Bi-directional translational pathways between scientific discoveries and primary care are crucial for improving individual patient care and population health. The Data QUEST pilot project is a program supporting data sharing amongst community based primary care practices and is built...

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Lin CP, Stephens KA, Baldwin LM, et al. Developing Governance for Federated Community-based EHR Data Sharing. AMIA Jt Summits Transl Sci Proc. 2014;2014:71-6
Lin, C. P., Stephens, K. A., Baldwin, L. M., Keppel, G. A., Whitener, R. J., Echo-Hawk, A., & Korngiebel, D. (2014). Developing Governance for Federated Community-based EHR Data Sharing. AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science, 201471-6.
Lin, Ching-Ping, et al. "Developing Governance for Federated Community-based EHR Data Sharing." AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science vol. 2014 (2014): 71-6.
Lin CP, Stephens KA, Baldwin LM, Keppel GA, Whitener RJ, Echo-Hawk A, Korngiebel D. Developing Governance for Federated Community-based EHR Data Sharing. AMIA Jt Summits Transl Sci Proc. 2014 Apr 07;2014:71-6. eCollection 2014. PMID: 25717404; PMCID: PMC4333692.
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Parental Catastrophizing Partially Mediates the Association between Parent-Reported Child Pain Behavior and Parental Protective Responses.

Pain research and treatment

Langer SL, Romano JM, Mancl L, Levy RL.
PMID: 24579047
Pain Res Treat. 2014;2014:751097. doi: 10.1155/2014/751097. Epub 2014 Jan 20.

This study sought to model and test the role of parental catastrophizing in relationship to parent-reported child pain behavior and parental protective (solicitous) responses to child pain in a sample of children with Inflammatory Bowel Disease and their parents...

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Langer SL, Romano JM, Mancl L, et al. Parental Catastrophizing Partially Mediates the Association between Parent-Reported Child Pain Behavior and Parental Protective Responses. Pain Res Treat. 2014;2014:751097doi: 10.1155/2014/751097.
Langer, S. L., Romano, J. M., Mancl, L., & Levy, R. L. (2014). Parental Catastrophizing Partially Mediates the Association between Parent-Reported Child Pain Behavior and Parental Protective Responses. Pain research and treatment, 2014751097. https://doi.org/10.1155/2014/751097
Langer, Shelby L, et al. "Parental Catastrophizing Partially Mediates the Association between Parent-Reported Child Pain Behavior and Parental Protective Responses." Pain research and treatment vol. 2014 (2014): 751097. doi: https://doi.org/10.1155/2014/751097
Langer SL, Romano JM, Mancl L, Levy RL. Parental Catastrophizing Partially Mediates the Association between Parent-Reported Child Pain Behavior and Parental Protective Responses. Pain Res Treat. 2014;2014:751097. doi: 10.1155/2014/751097. Epub 2014 Jan 20. PMID: 24579047; PMCID: PMC3918362.
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Program evaluation of Sea Mar's Chronic Care Program for Latino and Caucasian patients with type 2 diabetes: providers and staff perspectives.

Journal of multidisciplinary healthcare

Bond GE, Rechholtz L, Bosa C, Impert C, Barker S.
PMID: 23055743
J Multidiscip Healthc. 2012;5:241-8. doi: 10.2147/JMDH.S35489. Epub 2012 Sep 27.

PROBLEM STATEMENT: Unprecedented consumption of health care resources in the USA coupled with increasing rates of chronic disease has fueled pursuit of improved models of health care delivery. The Chronic Care Model provides an organizational framework for chronic care...

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Bond GE, Rechholtz L, Bosa C, et al. Program evaluation of Sea Mar's Chronic Care Program for Latino and Caucasian patients with type 2 diabetes: providers and staff perspectives. J Multidiscip Healthc. 2012;5:241-8doi: 10.2147/JMDH.S35489.
Bond, G. E., Rechholtz, L., Bosa, C., Impert, C., & Barker, S. (2012). Program evaluation of Sea Mar's Chronic Care Program for Latino and Caucasian patients with type 2 diabetes: providers and staff perspectives. Journal of multidisciplinary healthcare, 5241-8. https://doi.org/10.2147/JMDH.S35489
Bond, Gail E, et al. "Program evaluation of Sea Mar's Chronic Care Program for Latino and Caucasian patients with type 2 diabetes: providers and staff perspectives." Journal of multidisciplinary healthcare vol. 5 (2012): 241-8. doi: https://doi.org/10.2147/JMDH.S35489
Bond GE, Rechholtz L, Bosa C, Impert C, Barker S. Program evaluation of Sea Mar's Chronic Care Program for Latino and Caucasian patients with type 2 diabetes: providers and staff perspectives. J Multidiscip Healthc. 2012;5:241-8. doi: 10.2147/JMDH.S35489. Epub 2012 Sep 27. PMID: 23055743; PMCID: PMC3468164.
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Personalized medicine: challenges and opportunities for translational bioinformatics.

Personalized medicine

Overby CL, Tarczy-Hornoch P.
PMID: 24039624
Per Med. 2013 Jul 01;10(5):453-462. doi: 10.2217/pme.13.30.

Personalized medicine can be defined broadly as a model of healthcare that is predictive, personalized, preventive and participatory. Two US President's Council of Advisors on Science and Technology reports illustrate challenges in personalized medicine (in a 2008 report) and...

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Overby CL, Tarczy-Hornoch P. Personalized medicine: challenges and opportunities for translational bioinformatics. Per Med. 2013;10(5):453-462doi: 10.2217/pme.13.30.
Overby, C. L., & Tarczy-Hornoch, P. (2013). Personalized medicine: challenges and opportunities for translational bioinformatics. Personalized medicine, 10(5), 453-462. https://doi.org/10.2217/pme.13.30
Overby, Casey Lynnette, and Tarczy-Hornoch, Peter. "Personalized medicine: challenges and opportunities for translational bioinformatics." Personalized medicine vol. 10,5 (2013): 453-462. doi: https://doi.org/10.2217/pme.13.30
Overby CL, Tarczy-Hornoch P. Personalized medicine: challenges and opportunities for translational bioinformatics. Per Med. 2013 Jul 01;10(5):453-462. doi: 10.2217/pme.13.30. PMID: 24039624; PMCID: PMC3770190.
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Virtual Educational Outreach Intervention in Primary Care Based on the Principles of Academic Detailing.

The Journal of continuing education in the health professions

Baldwin LM, Fischer MA, Powell J, Holden E, Tuzzio L, Fagnan LJ, Hummel J, Parchman ML.
PMID: 30346338
J Contin Educ Health Prof. 2018;38(4):269-275. doi: 10.1097/CEH.0000000000000224.

No abstract available.

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Baldwin LM, Fischer MA, Powell J, et al. Virtual Educational Outreach Intervention in Primary Care Based on the Principles of Academic Detailing. J Contin Educ Health Prof. 2018;38(4):269-275doi: 10.1097/CEH.0000000000000224.
Baldwin, L. M., Fischer, M. A., Powell, J., Holden, E., Tuzzio, L., Fagnan, L. J., Hummel, J., & Parchman, M. L. (2018). Virtual Educational Outreach Intervention in Primary Care Based on the Principles of Academic Detailing. The Journal of continuing education in the health professions, 38(4), 269-275. https://doi.org/10.1097/CEH.0000000000000224
Baldwin, Laura-Mae, et al. "Virtual Educational Outreach Intervention in Primary Care Based on the Principles of Academic Detailing." The Journal of continuing education in the health professions vol. 38,4 (2018): 269-275. doi: https://doi.org/10.1097/CEH.0000000000000224
Baldwin LM, Fischer MA, Powell J, Holden E, Tuzzio L, Fagnan LJ, Hummel J, Parchman ML. Virtual Educational Outreach Intervention in Primary Care Based on the Principles of Academic Detailing. J Contin Educ Health Prof. 2018;38(4):269-275. doi: 10.1097/CEH.0000000000000224. PMID: 30346338; PMCID: PMC6443414.
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A survey of practices for the use of electronic health records to support research recruitment.

Journal of clinical and translational science

Obeid JS, Beskow LM, Rape M, Gouripeddi R, Black RA, Cimino JJ, Embi PJ, Weng C, Marnocha R, Buse JB.
PMID: 29657859
J Clin Transl Sci. 2017 Aug;1(4):246-252. doi: 10.1017/cts.2017.301.

Electronic health records (EHRs) provide great promise for identifying cohorts and enhancing research recruitment. Such approaches are sorely needed, but there are few descriptions in the literature of prevailing practices to guide their use. A multidisciplinary workgroup was formed...

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Obeid JS, Beskow LM, Rape M, et al. A survey of practices for the use of electronic health records to support research recruitment. J Clin Transl Sci. 2017;1(4):246-252doi: 10.1017/cts.2017.301.
Obeid, J. S., Beskow, L. M., Rape, M., Gouripeddi, R., Black, R. A., Cimino, J. J., Embi, P. J., Weng, C., Marnocha, R., & Buse, J. B. (2017). A survey of practices for the use of electronic health records to support research recruitment. Journal of clinical and translational science, 1(4), 246-252. https://doi.org/10.1017/cts.2017.301
Obeid, Jihad S, et al. "A survey of practices for the use of electronic health records to support research recruitment." Journal of clinical and translational science vol. 1,4 (2017): 246-252. doi: https://doi.org/10.1017/cts.2017.301
Obeid JS, Beskow LM, Rape M, Gouripeddi R, Black RA, Cimino JJ, Embi PJ, Weng C, Marnocha R, Buse JB. A survey of practices for the use of electronic health records to support research recruitment. J Clin Transl Sci. 2017 Aug;1(4):246-252. doi: 10.1017/cts.2017.301. PMID: 29657859; PMCID: PMC5890320.
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Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years.

Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

Edwards TC, Emerson J, Genatossio A, McNamara S, Goss C, Patrick DL, Onchiri F, Rosenfeld M.
PMID: 29358075
J Cyst Fibros. 2018 Sep;17(5):680-686. doi: 10.1016/j.jcf.2017.12.008. Epub 2018 Feb 01.

PURPOSE: Patient-reported outcomes are important clinical trial endpoints. Young children may not be able to reliably report on how they feel or function, so observer-reported outcomes (ObsROs) may be more appropriate for them. The purpose of this study was...

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Edwards TC, Emerson J, Genatossio A, et al. Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years. J Cyst Fibros. 2018;17(5):680-686doi: 10.1016/j.jcf.2017.12.008.
Edwards, T. C., Emerson, J., Genatossio, A., McNamara, S., Goss, C., Patrick, D. L., Onchiri, F., & Rosenfeld, M. (2018). Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society, 17(5), 680-686. https://doi.org/10.1016/j.jcf.2017.12.008
Edwards, T C, et al. "Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years." Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society vol. 17,5 (2018): 680-686. doi: https://doi.org/10.1016/j.jcf.2017.12.008
Edwards TC, Emerson J, Genatossio A, McNamara S, Goss C, Patrick DL, Onchiri F, Rosenfeld M. Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years. J Cyst Fibros. 2018 Sep;17(5):680-686. doi: 10.1016/j.jcf.2017.12.008. Epub 2018 Feb 01. PMID: 29358075; PMCID: PMC6051933.
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Rural Residence and Chronic Obstructive Pulmonary Disease Exacerbations. Analysis of the SPIROMICS Cohort.

Annals of the American Thoracic Society

Burkes RM, Gassett AJ, Ceppe AS, Anderson W, O'Neal WK, Woodruff PG, Krishnan JA, Barr RG, Han MK, Martinez FJ, Comellas AP, Lambert AA, Kaufman JD, Dransfield MT, Wells JM, Kanner RE, Paine R, Bleecker ER, Paulin LM, Hansel NN, Drummond MB.
PMID: 29584453
Ann Am Thorac Soc. 2018 Jul;15(7):808-816. doi: 10.1513/AnnalsATS.201710-837OC.

No abstract available.

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Burkes RM, Gassett AJ, Ceppe AS, et al. Rural Residence and Chronic Obstructive Pulmonary Disease Exacerbations. Analysis of the SPIROMICS Cohort. Ann Am Thorac Soc. 2018;15(7):808-816doi: 10.1513/AnnalsATS.201710-837OC.
Burkes, R. M., Gassett, A. J., Ceppe, A. S., Anderson, W., O'Neal, W. K., Woodruff, P. G., Krishnan, J. A., Barr, R. G., Han, M. K., Martinez, F. J., Comellas, A. P., Lambert, A. A., Kaufman, J. D., Dransfield, M. T., Wells, J. M., Kanner, R. E., Paine, R., Bleecker, E. R., Paulin, L. M., Hansel, N. N., Drummond, M. B. (2018). Rural Residence and Chronic Obstructive Pulmonary Disease Exacerbations. Analysis of the SPIROMICS Cohort. Annals of the American Thoracic Society, 15(7), 808-816. https://doi.org/10.1513/AnnalsATS.201710-837OC
Burkes, Robert M, et al. "Rural Residence and Chronic Obstructive Pulmonary Disease Exacerbations. Analysis of the SPIROMICS Cohort." Annals of the American Thoracic Society vol. 15,7 (2018): 808-816. doi: https://doi.org/10.1513/AnnalsATS.201710-837OC
Burkes RM, Gassett AJ, Ceppe AS, Anderson W, O'Neal WK, Woodruff PG, Krishnan JA, Barr RG, Han MK, Martinez FJ, Comellas AP, Lambert AA, Kaufman JD, Dransfield MT, Wells JM, Kanner RE, Paine R, Bleecker ER, Paulin LM, Hansel NN, Drummond MB. Rural Residence and Chronic Obstructive Pulmonary Disease Exacerbations. Analysis of the SPIROMICS Cohort. Ann Am Thorac Soc. 2018 Jul;15(7):808-816. doi: 10.1513/AnnalsATS.201710-837OC. PMID: 29584453; PMCID: PMC6207115.
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The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States.

Journal of clinical and translational science

Baldwin LM, Hassell L, Laukes C, Doyle M, Reedy A, Mollis B, Albritton S, Ciemins E, Coker R, Brant J, Tuttle KR, Baker L, Ramsey B.
PMID: 28649450
J Clin Transl Sci. 2017 Apr;1(2):94-100. doi: 10.1017/cts.2016.18. Epub 2017 Apr 19.

INTRODUCTION: The Institute of Translational Health Sciences (ITHS) promotes and supports translational research collaboration between clinicians, communities, and investigators across the five-state Washington, Wyoming, Alaska, Montana, and Idaho (WWAMI) region. The ITHS has developed a collaborative regional clinical research...

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Baldwin LM, Hassell L, Laukes C, et al. The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States. J Clin Transl Sci. 2017;1(2):94-100doi: 10.1017/cts.2016.18.
Baldwin, L. M., Hassell, L., Laukes, C., Doyle, M., Reedy, A., Mollis, B., Albritton, S., Ciemins, E., Coker, R., Brant, J., Tuttle, K. R., Baker, L., & Ramsey, B. (2017). The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States. Journal of clinical and translational science, 1(2), 94-100. https://doi.org/10.1017/cts.2016.18
Baldwin, Laura-Mae, et al. "The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States." Journal of clinical and translational science vol. 1,2 (2017): 94-100. doi: https://doi.org/10.1017/cts.2016.18
Baldwin LM, Hassell L, Laukes C, Doyle M, Reedy A, Mollis B, Albritton S, Ciemins E, Coker R, Brant J, Tuttle KR, Baker L, Ramsey B. The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States. J Clin Transl Sci. 2017 Apr;1(2):94-100. doi: 10.1017/cts.2016.18. Epub 2017 Apr 19. PMID: 28649450; PMCID: PMC5471901.
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Showing 1 to 12 of 186 entries