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Showing 1 to 12 of 88 entries
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Adolescent Research Participants' Descriptions of Medical Research.

AJOB empirical bioethics

Grady C, Nogues I, Wiener L, Wilfond BS, Wendler D.
PMID: 27004235
AJOB Empir Bioeth. 2016 Jan 01;7(1):1-7. doi: 10.1080/23294515.2015.1017059. Epub 2015 Feb 19.

BACKGROUND: Evidence shows both a tendency for research participants to conflate research and clinical care and limited public understanding of research. Conflation of research and care by participants is often referred to as the therapeutic misconception. Despite a lack...

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Grady C, Nogues I, Wiener L, et al. Adolescent Research Participants' Descriptions of Medical Research. AJOB Empir Bioeth. 2015;7(1):1-7doi: 10.1080/23294515.2015.1017059.
Grady, C., Nogues, I., Wiener, L., Wilfond, B. S., & Wendler, D. (2016). Adolescent Research Participants' Descriptions of Medical Research. AJOB empirical bioethics, 7(1), 1-7. https://doi.org/10.1080/23294515.2015.1017059
Grady, Christine, et al. "Adolescent Research Participants' Descriptions of Medical Research." AJOB empirical bioethics vol. 7,1 (2016): 1-7. doi: https://doi.org/10.1080/23294515.2015.1017059
Grady C, Nogues I, Wiener L, Wilfond BS, Wendler D. Adolescent Research Participants' Descriptions of Medical Research. AJOB Empir Bioeth. 2016 Jan 01;7(1):1-7. doi: 10.1080/23294515.2015.1017059. Epub 2015 Feb 19. PMID: 27004235; PMCID: PMC4797334.
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Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in .

Molecular genetics and metabolism reports

Vogel KR, Ainslie GR, Phillips B, Arning E, Bottiglieri T, Shen DD, Gibson KM.
PMID: 26120559
Mol Genet Metab Rep. 2015 Jun 01;3:80-87. doi: 10.1016/j.ymgmr.2015.03.009.

OBJECTIVE: Initial studies on the use of non-physiological amino acids (NPAAs) to block the accretion of Phe in the brain METHODS: Control and RESULTS: MAIB was partially converted to AIB CONCLUSIONS: Our data support further pharmacokinetic characterization of MAIB...

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Vogel KR, Ainslie GR, Phillips B, et al. Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in . Mol Genet Metab Rep. 2015;3:80-87doi: 10.1016/j.ymgmr.2015.03.009.
Vogel, K. R., Ainslie, G. R., Phillips, B., Arning, E., Bottiglieri, T., Shen, D. D., & Gibson, K. M. (2015). Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in . Molecular genetics and metabolism reports, 380-87. https://doi.org/10.1016/j.ymgmr.2015.03.009
Vogel, Kara R, et al. "Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in ." Molecular genetics and metabolism reports vol. 3 (2015): 80-87. doi: https://doi.org/10.1016/j.ymgmr.2015.03.009
Vogel KR, Ainslie GR, Phillips B, Arning E, Bottiglieri T, Shen DD, Gibson KM. Physiological Competition of Brain Phenylalanine Accretion: Initial Pharmacokinetic Analyses of Aminoisobutyric and Methylaminoisobutyric Acids in . Mol Genet Metab Rep. 2015 Jun 01;3:80-87. doi: 10.1016/j.ymgmr.2015.03.009. PMID: 26120559; PMCID: PMC4478616.
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Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations.

EGEMS (Washington, DC)

Cole AM, Stephens KA, Keppel GA, Estiri H, Baldwin LM.
PMID: 27141519
EGEMS (Wash DC). 2016 Mar 29;4(2):1206. doi: 10.13063/2327-9214.1206. eCollection 2016.

CONTEXT: The widespread adoption of electronic health records (EHRs) offers significant opportunities to conduct research with clinical data from patients outside traditional academic research settings. Because EHRs are designed primarily for clinical care and billing, significant challenges are inherent...

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Cole AM, Stephens KA, Keppel GA, et al. Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations. EGEMS (Wash DC). 2016;4(2):1206doi: 10.13063/2327-9214.1206.
Cole, A. M., Stephens, K. A., Keppel, G. A., Estiri, H., & Baldwin, L. M. (2016). Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations. EGEMS (Washington, DC), 4(2), 1206. https://doi.org/10.13063/2327-9214.1206
Cole, Allison M, et al. "Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations." EGEMS (Washington, DC) vol. 4,2 (2016): 1206. doi: https://doi.org/10.13063/2327-9214.1206
Cole AM, Stephens KA, Keppel GA, Estiri H, Baldwin LM. Extracting Electronic Health Record Data in a Practice-Based Research Network: Processes to Support Translational Research across Diverse Practice Organizations. EGEMS (Wash DC). 2016 Mar 29;4(2):1206. doi: 10.13063/2327-9214.1206. eCollection 2016. PMID: 27141519; PMCID: PMC4827782.
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Developing Governance for Federated Community-based EHR Data Sharing.

AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science

Lin CP, Stephens KA, Baldwin LM, Keppel GA, Whitener RJ, Echo-Hawk A, Korngiebel D.
PMID: 25717404
AMIA Jt Summits Transl Sci Proc. 2014 Apr 07;2014:71-6. eCollection 2014.

Bi-directional translational pathways between scientific discoveries and primary care are crucial for improving individual patient care and population health. The Data QUEST pilot project is a program supporting data sharing amongst community based primary care practices and is built...

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Lin CP, Stephens KA, Baldwin LM, et al. Developing Governance for Federated Community-based EHR Data Sharing. AMIA Jt Summits Transl Sci Proc. 2014;2014:71-6
Lin, C. P., Stephens, K. A., Baldwin, L. M., Keppel, G. A., Whitener, R. J., Echo-Hawk, A., & Korngiebel, D. (2014). Developing Governance for Federated Community-based EHR Data Sharing. AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science, 201471-6.
Lin, Ching-Ping, et al. "Developing Governance for Federated Community-based EHR Data Sharing." AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science vol. 2014 (2014): 71-6.
Lin CP, Stephens KA, Baldwin LM, Keppel GA, Whitener RJ, Echo-Hawk A, Korngiebel D. Developing Governance for Federated Community-based EHR Data Sharing. AMIA Jt Summits Transl Sci Proc. 2014 Apr 07;2014:71-6. eCollection 2014. PMID: 25717404; PMCID: PMC4333692.
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Commentary: Resilience Defined: An Alternative Perspective.

Journal of pediatric psychology

Rosenberg AR, Yi-Frazier JP.
PMID: 27013701
J Pediatr Psychol. 2016 Jun;41(5):506-9. doi: 10.1093/jpepsy/jsw018. Epub 2016 Mar 24.

No abstract available.

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Rosenberg AR, Yi-Frazier JP. Commentary: Resilience Defined: An Alternative Perspective. J Pediatr Psychol. 2016;41(5):506-9doi: 10.1093/jpepsy/jsw018.
Rosenberg, A. R., & Yi-Frazier, J. P. (2016). Commentary: Resilience Defined: An Alternative Perspective. Journal of pediatric psychology, 41(5), 506-9. https://doi.org/10.1093/jpepsy/jsw018
Rosenberg, Abby R, and Yi-Frazier, Joyce P. "Commentary: Resilience Defined: An Alternative Perspective." Journal of pediatric psychology vol. 41,5 (2016): 506-9. doi: https://doi.org/10.1093/jpepsy/jsw018
Rosenberg AR, Yi-Frazier JP. Commentary: Resilience Defined: An Alternative Perspective. J Pediatr Psychol. 2016 Jun;41(5):506-9. doi: 10.1093/jpepsy/jsw018. Epub 2016 Mar 24. PMID: 27013701; PMCID: PMC4888119.
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Challenging cases in research ethics.

The American journal of bioethics : AJOB

Taylor HA, Kuwana E, Wilfond BS.
PMID: 25856613
Am J Bioeth. 2015 Apr;15(4):75. doi: 10.1080/15265161.2015.1011002.

No abstract available.

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Taylor HA, Kuwana E, Wilfond BS. Challenging cases in research ethics. Am J Bioeth. 2015;15(4):75doi: 10.1080/15265161.2015.1011002.
Taylor, H. A., Kuwana, E., & Wilfond, B. S. (2015). Challenging cases in research ethics. The American journal of bioethics : AJOB, 15(4), 75. https://doi.org/10.1080/15265161.2015.1011002
Taylor, Holly A, et al. "Challenging cases in research ethics." The American journal of bioethics : AJOB vol. 15,4 (2015): 75. doi: https://doi.org/10.1080/15265161.2015.1011002
Taylor HA, Kuwana E, Wilfond BS. Challenging cases in research ethics. Am J Bioeth. 2015 Apr;15(4):75. doi: 10.1080/15265161.2015.1011002. PMID: 25856613; PMCID: PMC4397567.
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Participant-Centric Initiatives: Tools to Facilitate Engagement In Research.

Applied & translational genomics

Anderson N, Bragg C, Hartzler A, Edwards K.
PMID: 24772384
Appl Transl Genom. 2012 Dec 01;1:25-29. doi: 10.1016/j.atg.2012.07.001.

Clinical genomic research faces increasing challenges in establishing participant privacy and consent processes that facilitate meaningful choice and communication capacity for longitudinal and secondary research uses. There are an evolving range of participant-centric initiatives that combine web-based informatics tools...

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Anderson N, Bragg C, Hartzler A, et al. Participant-Centric Initiatives: Tools to Facilitate Engagement In Research. Appl Transl Genom. 2012;1:25-29doi: 10.1016/j.atg.2012.07.001.
Anderson, N., Bragg, C., Hartzler, A., & Edwards, K. (2012). Participant-Centric Initiatives: Tools to Facilitate Engagement In Research. Applied & translational genomics, 125-29. https://doi.org/10.1016/j.atg.2012.07.001
Anderson, Nicholas, et al. "Participant-Centric Initiatives: Tools to Facilitate Engagement In Research." Applied & translational genomics vol. 1 (2012): 25-29. doi: https://doi.org/10.1016/j.atg.2012.07.001
Anderson N, Bragg C, Hartzler A, Edwards K. Participant-Centric Initiatives: Tools to Facilitate Engagement In Research. Appl Transl Genom. 2012 Dec 01;1:25-29. doi: 10.1016/j.atg.2012.07.001. PMID: 24772384; PMCID: PMC3998724.
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Starting the Conversation - A Childhood Obesity Knowledge Project Using an App.

British journal of medicine and medical research

Appel HB, Huang B, Cole A, James R, Ai AL.
PMID: 24678462
Br J Med Med Res. 2014 Apr 01;4(7):1526-1538. doi: 10.9734/bjmmr/2014/5512.

METHODS: The study was conducted in 2011-2012. The sample, recruited from seven high schools in Snohomish County, Washington, was 65.3% minority participants. Of the 118 participants in the sample (n=118), 79 handwrote their responses (n=78) and 36 responded via...

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Appel HB, Huang B, Cole A, et al. Starting the Conversation - A Childhood Obesity Knowledge Project Using an App. Br J Med Med Res. 2014;4(7):1526-1538doi: 10.9734/bjmmr/2014/5512.
Appel, H. B., Huang, B., Cole, A., James, R., & Ai, A. L. (2014). Starting the Conversation - A Childhood Obesity Knowledge Project Using an App. British journal of medicine and medical research, 4(7), 1526-1538. https://doi.org/10.9734/bjmmr/2014/5512
Appel, Hoa B, et al. "Starting the Conversation - A Childhood Obesity Knowledge Project Using an App." British journal of medicine and medical research vol. 4,7 (2014): 1526-1538. doi: https://doi.org/10.9734/bjmmr/2014/5512
Appel HB, Huang B, Cole A, James R, Ai AL. Starting the Conversation - A Childhood Obesity Knowledge Project Using an App. Br J Med Med Res. 2014 Apr 01;4(7):1526-1538. doi: 10.9734/bjmmr/2014/5512. PMID: 24678462; PMCID: PMC3963698.
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A survey of practices for the use of electronic health records to support research recruitment.

Journal of clinical and translational science

Obeid JS, Beskow LM, Rape M, Gouripeddi R, Black RA, Cimino JJ, Embi PJ, Weng C, Marnocha R, Buse JB.
PMID: 29657859
J Clin Transl Sci. 2017 Aug;1(4):246-252. doi: 10.1017/cts.2017.301.

Electronic health records (EHRs) provide great promise for identifying cohorts and enhancing research recruitment. Such approaches are sorely needed, but there are few descriptions in the literature of prevailing practices to guide their use. A multidisciplinary workgroup was formed...

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Obeid JS, Beskow LM, Rape M, et al. A survey of practices for the use of electronic health records to support research recruitment. J Clin Transl Sci. 2017;1(4):246-252doi: 10.1017/cts.2017.301.
Obeid, J. S., Beskow, L. M., Rape, M., Gouripeddi, R., Black, R. A., Cimino, J. J., Embi, P. J., Weng, C., Marnocha, R., & Buse, J. B. (2017). A survey of practices for the use of electronic health records to support research recruitment. Journal of clinical and translational science, 1(4), 246-252. https://doi.org/10.1017/cts.2017.301
Obeid, Jihad S, et al. "A survey of practices for the use of electronic health records to support research recruitment." Journal of clinical and translational science vol. 1,4 (2017): 246-252. doi: https://doi.org/10.1017/cts.2017.301
Obeid JS, Beskow LM, Rape M, Gouripeddi R, Black RA, Cimino JJ, Embi PJ, Weng C, Marnocha R, Buse JB. A survey of practices for the use of electronic health records to support research recruitment. J Clin Transl Sci. 2017 Aug;1(4):246-252. doi: 10.1017/cts.2017.301. PMID: 29657859; PMCID: PMC5890320.
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The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States.

Journal of clinical and translational science

Baldwin LM, Hassell L, Laukes C, Doyle M, Reedy A, Mollis B, Albritton S, Ciemins E, Coker R, Brant J, Tuttle KR, Baker L, Ramsey B.
PMID: 28649450
J Clin Transl Sci. 2017 Apr;1(2):94-100. doi: 10.1017/cts.2016.18. Epub 2017 Apr 19.

INTRODUCTION: The Institute of Translational Health Sciences (ITHS) promotes and supports translational research collaboration between clinicians, communities, and investigators across the five-state Washington, Wyoming, Alaska, Montana, and Idaho (WWAMI) region. The ITHS has developed a collaborative regional clinical research...

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Baldwin LM, Hassell L, Laukes C, et al. The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States. J Clin Transl Sci. 2017;1(2):94-100doi: 10.1017/cts.2016.18.
Baldwin, L. M., Hassell, L., Laukes, C., Doyle, M., Reedy, A., Mollis, B., Albritton, S., Ciemins, E., Coker, R., Brant, J., Tuttle, K. R., Baker, L., & Ramsey, B. (2017). The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States. Journal of clinical and translational science, 1(2), 94-100. https://doi.org/10.1017/cts.2016.18
Baldwin, Laura-Mae, et al. "The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States." Journal of clinical and translational science vol. 1,2 (2017): 94-100. doi: https://doi.org/10.1017/cts.2016.18
Baldwin LM, Hassell L, Laukes C, Doyle M, Reedy A, Mollis B, Albritton S, Ciemins E, Coker R, Brant J, Tuttle KR, Baker L, Ramsey B. The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States. J Clin Transl Sci. 2017 Apr;1(2):94-100. doi: 10.1017/cts.2016.18. Epub 2017 Apr 19. PMID: 28649450; PMCID: PMC5471901.
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Examining Researcher Needs and Barriers for using Electronic Health Data for Translational Research.

AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science

Stephens KA, Lee ES, Estiri H, Jung H.
PMID: 26306262
AMIA Jt Summits Transl Sci Proc. 2015 Mar 25;2015:168-72. eCollection 2015.

To achieve the Learning Health Care System, we must harness electronic health data (EHD) by providing effective tools for researchers to access data efficiently. EHD is proliferating and researchers are relying on these data to pioneer discovery. Tools must...

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Stephens KA, Lee ES, Estiri H, et al. Examining Researcher Needs and Barriers for using Electronic Health Data for Translational Research. AMIA Jt Summits Transl Sci Proc. 2015;2015:168-72
Stephens, K. A., Lee, E. S., Estiri, H., & Jung, H. (2015). Examining Researcher Needs and Barriers for using Electronic Health Data for Translational Research. AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science, 2015168-72.
Stephens, Kari A, et al. "Examining Researcher Needs and Barriers for using Electronic Health Data for Translational Research." AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science vol. 2015 (2015): 168-72.
Stephens KA, Lee ES, Estiri H, Jung H. Examining Researcher Needs and Barriers for using Electronic Health Data for Translational Research. AMIA Jt Summits Transl Sci Proc. 2015 Mar 25;2015:168-72. eCollection 2015. PMID: 26306262; PMCID: PMC4525243.
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Successful Deployment of High Flow Nasal Cannula in a Peruvian Pediatric Intensive Care Unit Using Implementation Science-Lessons Learned.

Frontiers in pediatrics

Nielsen KR, Becerra R, Mallma G, Tantaleán da Fieno J.
PMID: 29696135
Front Pediatr. 2018 Apr 11;6:85. doi: 10.3389/fped.2018.00085. eCollection 2018.

Acute lower respiratory infections are the leading cause of death outside the neonatal period for children less than 5 years of age. Widespread availability of invasive and non-invasive mechanical ventilation in resource-rich settings has reduced mortality rates; however, these...

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Nielsen KR, Becerra R, Mallma G, et al. Successful Deployment of High Flow Nasal Cannula in a Peruvian Pediatric Intensive Care Unit Using Implementation Science-Lessons Learned. Front Pediatr. 2018;6:85doi: 10.3389/fped.2018.00085.
Nielsen, K. R., Becerra, R., Mallma, G., & Tantaleán da Fieno, J. (2018). Successful Deployment of High Flow Nasal Cannula in a Peruvian Pediatric Intensive Care Unit Using Implementation Science-Lessons Learned. Frontiers in pediatrics, 685. https://doi.org/10.3389/fped.2018.00085
Nielsen, Katie R, et al. "Successful Deployment of High Flow Nasal Cannula in a Peruvian Pediatric Intensive Care Unit Using Implementation Science-Lessons Learned." Frontiers in pediatrics vol. 6 (2018): 85. doi: https://doi.org/10.3389/fped.2018.00085
Nielsen KR, Becerra R, Mallma G, Tantaleán da Fieno J. Successful Deployment of High Flow Nasal Cannula in a Peruvian Pediatric Intensive Care Unit Using Implementation Science-Lessons Learned. Front Pediatr. 2018 Apr 11;6:85. doi: 10.3389/fped.2018.00085. eCollection 2018. PMID: 29696135; PMCID: PMC5904213.
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Showing 1 to 12 of 88 entries